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Name of Collaboratory :

 

BIG Health Consortium

 
 

URL :

  http://www.bighealthconsortium.org/  
 

Collaboratory Status :

 
Operational   Start Date : 2008 End Date : Info Last Updated : Wed, Dec 8 2010 5:01am PST
 
 

Primary Collaboratory Function :

  Distributed Research Center  
 

Secondary Collaboratory Functions :

  Virtual Community of Practice  
 

Domain(s) :

  BIOLOGICAL/AGRICULTURAL SCIENCES >Biological Sciences >Biomedical Sciences  
 

Brief Description of the Collaboratory :

 

An increasing number of academic medical centers and healthcare providers are reconfiguring their organizations and systems to deliver truly personalized care. But no systematic, national endeavor yet exists to connect all of the requisite constituencies and capabilities together into a seamless, network process to demonstrate the feasibility and value of this new model for healthcare.

To address this challenge, the BIG Health Consortium™ was launched by the National Cancer Institute in September 2008 as a partnership comprised of all the key stakeholders in healthcare. The Consortium is designed to foster an integrated and interactive ecosystem (or “community of communities”) of previously-unlinked sectors within life sciences and health care, who work collaboratively to implement a rapid-learning approach to health care and thereby make personalized medicine a reality.

The BIG Health Consortium™ is a collaborative endeavor among stakeholders in biomedicine—including government, academe, industry, non-profit organizations, and consumers—who come together in a novel organizational framework to demonstrate the feasibility and benefits of a rapid-learning health system that can deliver personalized medicine.

The BIG Health Consortium™ is implementing various aspects of the rapid-learning health system through real-world projects, each of which has both an immediate benefit to one or more stakeholders, and—if successful—can serve as a template for others to adopt. Projects are conceived, developed and executed by participants through a series of working groups hosted by the NCI that meet online and in person.

 
 

Access to Instruments :

   
 

Access to Information Resources :

   
 

Access to People as Resources :

  To ensure that all organizations have a voice in the process of conceiving, developing, and implementing projects, BIG Health has developed a process comprised of face-to-face and virtual sessions for working groups, and a web-based wiki to develop requisite documents and archive information in an online "virtual" environment.

Every participant is invited to attend meetings and teleconferences, and to define a role that fulfills their own organizational objectives while advancing 21st century medicine.
Action Groups

The Consortium has convened a number of Action Groups to advance the BIG Health Consortium™ from concept to reality. These groups focus on the following:

* The Communications and Outreach Action Group focuses on the communications policies, strategies, tools and programs needed to ensure that all stakeholders in the health care value chain are informed of the Consortium's activities with timely and accurate information to achieve the Consortium goals.
* The IT Leadership Action Group's goals are to establish the informatics infrastructure needed to facilitate interoperability within and across the BIG Health Consortium™, strategize on how to link current disconnected components, and coordinate IT activities for all BIG Health projects.
* The Orchestration Action Group is tasked with developing a Guidance Framework for the BIG Health Consortium™ overall, and will focus specifically on establishing criteria to select and prioritize the Consortium's portfolio of Demonstration Projects.
* The Project Action Group focuses on discussion, analysis, and input on concepts of interest in order to move BIG Health ideas from the Concepts phase to the Proposals and BIG Health Projects phases.

These action groups are building an inventory of concepts and projects to demonstrate the viability of personalized medicine in real time.
 
 

Funding Agency or Sponsor :

 
United States Department of Health and Human Services
National Institutes of Health (NIH)
National Cancer Institute (NCI)
 
 
 

Notes on Funding Agencies/Sponsors:

 
 
 
Organizations Otherwise Associated:
 
Organization name:
Approx # of participants:
Description of organization's role(s):
23andMe
1
Participant
5am Solutions
1
Participant
Agilex
1
Participant
Attain, LLC
1
Participant
Baylor College of Medicine
1
Participant
Booz Allen Hamilton
3
Participant
Brookings Institution
1
Participant
Cancer Association of South Africa
1
Participant
Canyon Ranch Institute
Participant
University of California, San Francisco (UCSF)
   Carol Franc Buck Breast Care Center
1
Participant
Massachusetts Institute of Technology (MIT)
   Center for Biomedical Innovation (MIT)
Participant
Cerner
1
Participant
Christiana Care Health System
1
Participant
CLC Bio LLC
1
Participant
CollabRx
1
Participant
Critical Path Institute
1
Participant
United States Department of Health and Human Services
   Personalized Health Care
1
Participant
   National Institutes of Health (NIH)
      National Cancer Institute (NCI)
2
Participant
         NCI Community Cancer Centers Program (NCCCP)
1
Participant
         Data Sharing and Intellectual Capital (DSIC) Knowledge Center
2
Participant
Deloitte
Participant
DocInsight
Participant
Dr. Susan Love Research Foundation
Participant
Duke University
   Duke University Medical Center
      Duke Cancer Institute
3
Participant
Ewing Marion Kauffman Foundation
Participant
FasterCures
1
Participant
Feinstein Kean Healthcare
1
Participant
Genzyme
1
Participant
George Washington University
Participant
Georgetown University
Participant
HealthCare IT, Inc.
1
Participant
IBM
1
Participant
National Academies
   National Academy of Sciences
      Institute of Medicine of the National Academies (IOM)
Participant
Johnson and Johnson
Participant
LIVESTRONG Lance Armstrong Foundation
1
Participant
Logical Design Database Solutions
1
Participant
Mohr Davidow Ventures
1
Participant
Monogram Biosciences
1
Participant
Navigenics
1
Participant
Centers for Disease Control and Prevention (CDC)
   Office of Public Health Genomics (CDC) (OPHG)
1
Participant
Omada Technology Solutions
1
Participant
Optimize IT Consulting
1
Participant
Oracle
Participant
PatientsLikeMe
1
Participant
Personalized Medicine Coalition (PMC)
1
Participant
SAS
1
Participant
Science Applications International Corporation (SAIC)
1
Participant
Sophic Systems Alliance
1
Participant
SRA International
1
Participant
Strategic Medicine, Inc.
1
Participant
 
TOTAL PARTICIPANTS:
45
 

Notes on Participants/Organizations:
The caBIG collaboratory is also listed as a participant.

Organizations from diverse sectors of the biomedical enterprise are currently participating in the BIG Health Consortium™. Among them are cancer centers; integrated care providers; academic centers; medical schools; diagnostics laboratories; personal genomics firms; patient advocacy and think-tank organizations; venture capitalists; and others. Each of the stakeholder groups perceives the collaborative opportunities in BIG Health as a pathway to fulfilling their own organizational missions:

* Patient advocates seek a faster path to new, more effective treatments.
* Health care providers and insurers seek to measure effectiveness and efficacy, and to improve patient care.
* Community cancer centers seek increased participation in clinical research, and screening programs to lessen cancer disparities.
* Academic centers seek to integrate clinical and discovery research and improve research productivity.
* Diagnostic firms seek to substantiate the critical role of molecular diagnostics in the health care equation.
* Pharmaceutical innovators seek access to “cohorts” of patients for clinical research.
* IT providers seek adoption of their products and services to underpin the new generation of medicine.

Participants are currently working as a part of their Action Groups to engage additional thought leaders, visionaries, and innovators from all areas of healthcare; and to select, prioritize and launch a portfolio of projects designed to demonstrate personalized medicine in real time.

   
     
 
 

Communications Technology Used :

   
 

Technical Capabilities :

   
  Key Articles :    
 

Project-reported performance data :

   
 
         
    
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