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Name of Collaboratory :


Cohort Consortium


URL :  

Collaboratory Status :

Operational   Start Date : 2006 End Date : Info Last Updated : Wed, Dec 8 2010 10:01pm PST

Primary Collaboratory Function :

  Distributed Research Center  

Secondary Collaboratory Functions :

  Community Data Systems  

Domain(s) :

  NON-S&E >Health and Medical Sciences >Health Sciences, Other  

Brief Description of the Collaboratory :


The Cohort Consortium is an extramural-intramural partnership formed by the National Cancer Institute (NCI) to address the need for large-scale collaborations to pool the large quantity of data and biospecimens necessary to conduct a wide range of cancer studies. The Consortium, through its collaborative network of investigators, provides a coordinated, interdisciplinary approach to tackling important scientific questions, economies of scale, and opportunities to quicken the pace of research.

The Cohort Consortium includes investigators responsible for 41 high-quality cohorts involving more than 4 million people. The cohorts are international in scope and cover large and diverse populations. Extensive risk factor data are available on each cohort, and biospecimens including germline DNA collected at baseline, are available on more than 2 million individuals. Investigators team up to use common protocols and methods, and to conduct coordinated parallel and pooled analyses.

Dozens of initiatives have been launched by Cohort Consortium members, including the following four signature initiatives (all of which are collaboratories in this database:

The Body Mass Index (BMI) and All Cause Mortality Pooling Project
The Breast and Prostate Cancer Cohort Consortium (BPC3)
The Pancreatic Cancer Cohort Consortium
The Vitamin D Pooling Project (VDPP)

Other projects are (some of which are collaboratories, some not):
Agricultural Health Study US 1993
Alpha-Tocopherol, Beta-Carotene Cancer Prevention (ATBC) Study Finland 1985
Black Women's Health Study (BWHS) US 1995
Breakthrough Generations Study UK 2003
Breast Cancer Detection Demonstration Project (BCDDP) Follow-Up Study US 1980
California Teachers Study (CTS) US 1995
Canadian Study of Diet, Lifestyle, and Health Canada 1992
Cancer Prevention Studies (CPS I, CPS II, & CPS II Nutrition Cohort) US 1959 (CPS I)
1982 (CPS II)
1992 (CPS II Nutrition Cohort)
Carotene and Retinol Efficacy Trial (CARET) US 1985
CLUE I & II US 1974 (CLUE I)
1989 (CLUE II)
Cohort of Swedish Men Sweden 1997
European Prospective Investigation into Cancer and Nutrition (EPIC) Denmark, France, Germany, Greece, Italy, The Netherlands, Norway, Spain, Sweden, UK 1992
Golestan Cohort Study (GCS) Iran 2004
Health Professionals Follow-Up Study (HPFS) US 1986
Iowa Women's Health Study US 1986
Mayo Mammography Health Study US 2003
Melbourne Collaborative Cohort Study Australia 1990 (baseline)
2001 (biorepository)
The Millennium Cohort Study US 2001
Multiethnic Cohort Study of Diet and Cancer (MEC) US 1993
NIH-AARP Diet and Health Study US 1995
Northern Sweden Health and Disease Study Sweden 1985
Nurses' Health Study I (NHS I) US 1976
Nurses' Health Study II (NHS II) US 1989
Nutrition Intervention Trials - Linxian China 1984
NYU Women's Health Study US 1985
Physicians' Health Study (PHS) I & II US 1982 (PHS I)
1997 (PHS II)
Prostate, Lung, Colorectal and Ovarian (PLCO) Cancer Screening Trial US 1993
RERF Life Span Study, Adult Health Study, and F1 Cohorts (Hiroshima and Nagasaki) Japan 1950 (main cohort)
1958 (clinical sub-sample)
2002 (children of survivors)
Seventh-day Adventist Cohort Study US 2002
Shanghai Cohort Study China 1986
Shanghai Men's Health Study (SMHS) China 2001
Shanghai Women's Health Study (SWHS) China 1996
Singapore Chinese Health Study Singapore 1993
Sister Study US 2003
Southern Community Cohort Study (SCCS) US 2002
Swedish Mammography Cohort (SMC) Sweden 1987
U.S. Radiologic Technologists (USRT) Cohort US 1982
Vitamins and Lifestyle (VITAL) Study US 2000
Women's Health Initiative (WHI) US 1993
Women's Health Study (WHS) US 1992
Women's Lifestyle and Health Study (WLHS)


Access to Instruments :


Access to Information Resources :


Access to People as Resources :

  They have an annual meeting for the whole consortium, but the meetings/communication vary by project.  

Funding Agency or Sponsor :

United States Department of Health and Human Services
National Institutes of Health (NIH)
National Cancer Institute (NCI)
Division of Cancer Epidemiology and Genetics (NCI) (DCEG)

Notes on Funding Agencies/Sponsors:

Organizations with Funded Participants:
Organization name:
Approx # of participants:
Description of organization's role(s):
American Cancer Society (ACS)
Secretariat Past Member; Cancer Prevention Studies (CPS I, CPS II, & CPS II Nutrition Cohort)
Brigham and Womens Hospital
Secretariat Voting Member; Womens Health Study
United States Department of Health and Human Services
   National Institutes of Health (NIH)
      National Institute of Environmental Health Sciences (NIEHS)
Sister Study
      National Cancer Institute (NCI)
NIH-AARP Diet and Health Study
         Division of Cancer Epidemiology and Genetics (NCI) (DCEG)
Secretariat Voting Member; Past Member; Nutrition Intervention Trials - Linxian
         Division of Cancer Control and Population Sciences (NCI) (DCCPS)
Secretariat Voting Member; Secretariat Non-Voting Members; Past Members; The Breast Cancer Detection Demonstration Project (BCDDP) Follow-up Study
Fred Hutchinson Cancer Research Center
VITamins and Lifestyle (VITAL) Study: Cohort Study of Dietary Supplements and Cancer Risk
Harvard University
   Harvard School of Public Health
Health Professionals Follow-Up Study
University of London
   Institute of Cancer Research (University of London) (ICR)
Breakthrough Generations Study
Johns Hopkins University
Secretariat Past Member
   Johns Hopkins Bloomberg School of Public Health
CLUE I & II Studies
Karolinska Institutet
Cohort of Swedish Men; Swedish Mammography Cohort
Loma Linda University
   Loma Linda University School of Public Health
Seventh-day Adventist Cohort Study: Cancer Epidemiology in Adventists-A Low Risk Group
University of Minnesota
   Masonic Cancer Center (University of Minnesota)
Shanghai Cohort Study; Singapore Chinese Health Study
Mayo Clinic
Secretariat Voting Member; Mayo Mammography Health Study
New York University (NYU)
Secretariat Voting Member; NYU Women’s Health Study
Radiation Effects Research Foundation (RERF)
Life Span Study, Adult Health Study, and F1 Cohorts (Hiroshima and Nagasaki)
Boston University
   Slone Epidemiology Center (Boston University)
Secretariat Voting Member
Umea University
Northern Sweden Health and Disease Study
University of Tromso (UiT)
Women’s Lifestyle and Health (WLHS)
Vanderbilt University
Secretariat Voting Member; Shanghai Mes Health Study; Shanghai Womens Health Study

Notes on Participants/Organizations:


Communications Technology Used :


Technical Capabilities :

  Key Articles :    

Project-reported performance data :

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