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Name of Collaboratory :

 

Biobanking and Biomolecular Research Infrastructure (BBMRI)

 
 

URL :

  http://www.bbmri.eu/  
 

Collaboratory Status :

 
In Development   Start Date : 2008 End Date : Info Last Updated : Mon, Nov 1 2010 12:00am PDT
 
 

Primary Collaboratory Function :

  Community Infrastructure Development  
 

Secondary Collaboratory Functions :

  Community Data Systems, Distributed Research Center  
 

Domain(s) :

  BIOLOGICAL/AGRICULTURAL SCIENCES >Biological Sciences >Biomedical Sciences, BIOLOGICAL/AGRICULTURAL SCIENCES >Biological Sciences >Biological Sciences, General  
 

Brief Description of the Collaboratory :

 

Goals of BBMRI
The preparatory phase aims to provide the basis for the actual operational biobanking infrastructure and plans to provide a strategy and structure for:
• a pan-European inventory of major European biobanks
• complementation of existing resources and technologies
• establishment of clear access rules
• facilitation of transnational combination and exchange of biological materials and data
• ensuring coordinated development of resources and technologies
• reducing the fragmentation of the scientific community
• embedding activities into European scientific, ethical, legal and societal

Preparatory Phase of BBMRI
During the preparatory phase (February 2008- April 2010) the FP7 funded pan-European Biobanking and Biomolecular Resources Research Infrastructure (BBMRI) project comprises 51 participants and more than 200 associated organisations.
Participating Members
Participants: 51
Thereof: 30 Scientific Partners and 24 Funding Organisations (ministries, research councils)
Associated Organisations: >200
Budgetary information
Preparatory cost: 5 M€
Funded by: FP 7 framework programme grant
Grant Agreement Nr: 212111
Construction cost: approx. 170 M€
to be further determined in the preparatory phase
Operation cost (total): approx. 15 M€/year
Timetable until operation
Preparatory phase: 27 months (February 1st 2008 – April 30th 2010)
Construction phase: 12 months for core network / 36 months for fully established infrastructure
Operation: 20 - 30 years

BBMRI will be implemented under the ERIC (European Research Infrastructure Consortium) legal entity. BBMRI-ERIC foresees headquarters (central coordination) in Graz, Austria, responsible for coordination of the activities of National Nodes established in participating countries. BBMRI is in the process of submitting its application to the European Commission for a legal status under the ERIC regulation, with an expected start date at the end of 2011.

When the preparatory phase of BBMRI came to its end on January 31, 2011, also the Governance and Management Structures which were based on the Grant Agreement came to end. In its final teleconference on Jan 25, 2011, the BBMRI Steering Committee agreed that the current Steering Committee will continue to function as an interim governing body of BBMRI until the Memorandum of Understanding (MoU) for the BBMRI-ERIC application is signed by the interested Member States. As BBMRI-ERIC will be an organization of Member States, Associated States, third countries and intergovernmental organizations, current biobanks that are partners or associated organizations of BBMRI and wish to become members of BBMRI-ERIC need to contact their ministries and encourage them to seek membership under the new legal entity.

They have national hubs in:
Sweden
www.bbmri.se

Finland
http://www.bbmri.fi/fi

BBMRI Nordic: A collaborative network between National Biobanking Infrastructures in the Nordic Countries
http://www.bbmri.se/en/About-BBMRIse/BBMRI-Nordic/

The Netherlands
www.bbmri.nl

Italy
http://www.bbmri-eric.it/

They are organized around seven work packages:
1. Management and coordination
2. Population-based biobanks
3. Disease-oriented biobanks
4. Biomolecular tools and resources
5. Database harmonization and IT-infrastructure
6. Ethical, legal, and societal issues
7. Funding and financing

They also have a Scientific and Ethical Advisory Board.

 
 

Access to Instruments :

   
 

Access to Information Resources :

  BBMRI documents shall as far as possible to be open to public.
Draft documents will be available on the website in member area only.
 
 

Access to People as Resources :

  BBMRI members represent the key providers of resources and technologies. Members are leaders in the field and drivers of innovation and scientific excellence. Membership is non-exclusive so that members link BBMRI to other national, European (e.g., other FP7 programs) and global initiatives (e.g., the emerging OECD global network of Biological Resource Centres or WHO programmes).
Associated partners and subcontractors provide certain resources (services, data, samples, materials) to BBMRI. An associated partner, for instance, a hospital or research institute which provides biological samples and data, may be either reimbursed or compensated for its contribution by being granted free access to resources and technologies of the BBMRI. Associated partners may also be ministries, governments, research councils, and funding agencies from interested countries whether or not they currently support biobank or biomolecular resource infrastructure projects
Users may come from different fields of academia and industry. Access will be provided in the context of specific research projects and on the basis of secured funding. Incentives may be provided for EU Member States and for industry to enter into general user agreements. Those wishing to join BBMRI must submit an expression of interest, available on their Website.
This structure provides great flexibility so that new members and partners can be connected at any time and so that it can be adapted to emerging needs in biomedical research. The IT infrastructure which employs federated database architecture and grid computing technology will integrate the complex network of hubs, members and partners. Hubs will be coordinated and directed by an executive management, which is supported by a governance council as well as by a high-calibre advisory board and receives input from the stakeholder forum to guarantee clear responsibilities as well as open and transparent decision-finding processes.
 
 

Funding Agency or Sponsor :

 
European Commission
FP7 Framework Program (European Commission)
 
 
 

Notes on Funding Agencies/Sponsors:
The FP7 Framework Program funded the preparatory phase, but it is not specified who is funding subsequent work.

 
 
 
Organizations with Funded Participants:
 
Organization name:
Approx # of participants:
Description of organization's role(s):
Alleanza contro il cancro
1
Participant
Babraham Bioscience Technologies
1
Participant
Biomedical Research Foundation of the Academy of Athens
1
Participant
British Medical Research Council (MRC)
1
Participant
Bundesministerium für Wissenschaft und Forschung
1
Participant
Cardiff University
1
Participant
Comitato Nazionale per la Biosicurezza, le Biotecnologie e le Scienze della Vita, Istituto Superiore di Sanita
1
Participant
deCODE genetics
1
Participant
Dutch Federation of University Medical Centers
1
Participant
Erasmus Medical Center
1
Participant
European Molecular Biology Laboratory (EMBL)
1
Participant
Féderation Hospitalière de France
1
Participant
Federal Ministry of Education and Research (BMBF)
1
Participant
Fondazione Telethon
1
Participant
Fraunhofer Institute for Biomedical Engineering (IBMT)
1
Participant
Fundación para el desarrollo de la investigación en Genómica y Proteómica
1
Participant
Health Research Board - Ireland (HRB)
1
Participant
Hellenic Republic Ministry of Development
1
Participant
Helmholtz Association
1
Participant
Helmholtz Zentrum München - German Research Center for Environmental Health
2
Participant
Icelandic Centre for Research
1
Participant
Inserm
3
Participant
Institut Mérieux
1
Participant
Institut National du Cancer
1
Participant
Institute de Salud Carlos III (ISCIII)
1
Participant
Institute for Biomedical Technologies
1
Participant
International Agency for Research on Cancer
2
Participant
International Prevention Research Institute (IPRI)
2
Participant
Irish Platform for Patients' Organisations, Science & Industry
1
Participant
Istituto Nazionale per la Ricerca sul Cancro
2
Participant
Karolinska Institutet
1
Participant
Legal Pathways b.v.
1
Participant
Leiden University
   Leiden University Medical Center (LUMC)
1
Participant
Life Science Governance Institute
1
Participant
Max Planck Institute for Molecular Genetics
1
Participant
Medical University of Graz
1
Participant
Ministry of Education and Research (Estonia)
1
Participant
Ministry of Education, Culture and Science (Netherlands)
1
Participant
National Public Health Institute of Finland (NPHI)
2
Participant
Netherlands Organisation for Health Research and Development (ZonMw)
1
Participant
Norwegian Institute of Public Health
1
Participant
Norwegian University of Science and Technology
1
Participant
Semmelweis University
1
Participant
UK Biobank
1
Participant
Universität Klagenfurt
1
Participant
University of Groningen
2
Participant
University of Malta
1
Participant
University of Manchester
2
Participant
University of Salamanca
1
Participant
University of Tartu
1
Participant
University of Turku
1
Participant
Uppsala University - Uppsala universitet
3
Participant
VITRO Ltd.
1
Participant
 
TOTAL PARTICIPANTS:
243
 

Notes on Participants/Organizations:
"Participants" are co-applicants of the project and full members. They have an official vote on formal issues in the Governance Council.

Associated Organisations are biobanks (which fulfil certain quality criteria regarding the size of the biobank, specific assets, and secured funding) or experts in the field of biobanking (e.g. ELSI experts, patient groups). Associated Organisations do not have an official vote on formal issues but their input and active involvement in the project ensures that the solutions developed will be suitable for future integration of biobanks into the BBMRI structure.

Also listed as a participant is Irish Clinical Research Infrastructure Network (a collaboratory).

Also listed as associated organizations are the following collaboratories:

1. The consortium of Biological Resource Centres (BRC) and Tumour cell and tissue banks of the Marseilles metropolitan area" (which seems to have been a collaboratory in the early 2000s, but I cannot find anything about it) (Disease-focused biobank – tumour tissue (C.Chabannon)).

2. EuroBioBank (Rare disease biobank network (F. Bignami); D. Horn).

3. German Competence Network for HIV/AIDS (Sera collection (N. Brockmeyer)).

4. BrainNet Europe (Consortium of 18 European brain banks (H.A. Kretzschmar)).

5. German Dementia Competence Network (Population-based & disease-focused biobank – cognitive disorders, DNA, blood (W. Maier)).

6. German Competence Network for Heart Failure (Disease-focused biobank - CVD blood(C. Özcelik)).

7. Telematikplattform Medizinischer Forschungsnetze (ELSI, Quality, Harmonisation, Standardization of Biobanks (S. Semler)).

8. Danubian BioBank Consortium (Population-based & disease focused biobank – metabolic diseases (G. Schmitz)).

9. National Genome Research Network (Biobank Quality Management (S. Wiemann)).

10. Alliance of German Cryobanks (Network of Biobank Cryo Technology (H. Zimmermann)).

11. Cooperative Health Research in the Region of Augsburg (Population-based biobank – blood, DNA (H.E. Wichmann)).

12. Telethon Genetic Biobank Network (Coordination of seven Italian biobanks (F. D. Bricarelli)).

13. Uppsala Biobank (Anna Beskow).

14. Biobank Suisse (Network of disease-oriented research biobanks (D. Simeon-Dubach)).

15. Confederation of Cancer Biobanks (Disease oriented biobanks, cancer specific (C.Magee, A.Carter)).

16. LifeLines (Population based of northern provinces (S. Poppema)).

17. National Cancer Research Institute (Consortium of institutions: development, management & use of cancer biobanks (J. Cope)).

18. UK Stem Cell Bank (Cell Culture Collections (G. Stacey)).

   
     
 
 

Communications Technology Used :

   
 

Technical Capabilities :

   
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Project-reported performance data :

   
 
         
    
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