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Name of Collaboratory :

 

Confederation of Cancer Biobanks

 
 

URL :

  http://www.oncoreuk.org/pages/researchers_confederation.html  
 

Collaboratory Status :

 
Operational   Start Date : 2006 End Date : Info Last Updated : Tue, Nov 2 2010 12:01pm PDT
 
 

Primary Collaboratory Function :

  Community Infrastructure Development  
 

Secondary Collaboratory Functions :

  Community Data Systems, Distributed Research Center  
 

Domain(s) :

  BIOLOGICAL/AGRICULTURAL SCIENCES >Biological Sciences >Biomedical Sciences, BIOLOGICAL/AGRICULTURAL SCIENCES >Biological Sciences >Pathology, Human and Animal  
 

Brief Description of the Collaboratory :

 

The Confederation of Cancer Biobanks (CCB) is a consortium of organisations based in the UK that are involved in the development, management and use of biobank resources for cancer research. onCore UK acts as the secretariat for the CCB on behalf of the NCRI.

The Confederation aims to promote and disseminate a collective view on best practices for biobanks and to promote transfer of knowledge and experiences between banks. While individual banks retain their full autonomy, membership leads to mutual benefit, ensures complementarities, avoids unnecessary competition and ensures a coordinated approach to cancer biosample provision. This will benefit all involved by allowing the sharing of expertise and information, the establishment of harmonised standards for the operation of cancer biobanks and provide a means to access a larger pool of biosamples from the confederated banks.

 
 

Access to Instruments :

  CCB Members receive:

access to the Members Area of the web site containing shared resources
inclusion in email discussion fora with other members
networking opportunities with other members
inclusion in a collective voice to research funders, policy makers, legislators and others
inclusion in the NCRI’s new on-line sample directory
one free registration for each CCB workshop
a future opportunity to pursue accreditation/quality endorsement for the bank
a potential future opportunity for your donors to join a donor forum, which provides patients/sample donors with a mechanism of keeping in touch with research biobanking activities.
 
 

Access to Information Resources :

  Any organisation based in the UK, which collects and distributes biosamples for cancer research (not necessarily in the UK), may apply to join. The NCRI also encourages new banks that are planning to collect and distribute materials, to join at an early stage of setting up.

The application form asks them to share information on the types of sample they collect and how they operate – for sharing with other members. We also ask them to agree to the contents of the Guiding Principles and Memorandum of Understanding which the Confederation has adopted. This includes requiring them to agree to share all of their findings/tools/results/instruments/data etc. They may already be fully compliant or you may just be setting up and aspiring to compliance. In addition they that they complete an on-line survey to provide information on their sample collection that will be published in the NCRI’s new on-line Cancer Biosample Directory.
 
 

Access to People as Resources :

  CCB Members receive:

access to the Members Area of the web site containing shared resources
inclusion in email discussion fora with other members
networking opportunities with other members
inclusion in a collective voice to research funders, policy makers, legislators and others
inclusion in the NCRI’s new on-line sample directory
one free registration for each CCB workshop
a future opportunity to pursue accreditation/quality endorsement for the bank
a potential future opportunity for your donors to join a donor forum, which provides patients/sample donors with a mechanism of keeping in touch with research biobanking activities.
 
 

Funding Agency or Sponsor :

   
 
 

Notes on Funding Agencies/Sponsors:
The CCB has no dedicated resources. Institutions and organisations participating in the collaboration do so at their own cost, and are encouraged to provide a minimal amount of resources, e.g., by contributing to the organisation of meetings and the coordination of working groups. The Members may raise ad-hoc funds to support administration, coordination, meetings or the specific activities of working groups or individual Members.

 
 
 
Organizations with Un-Funded Participants:
 
Organization name:
Approx # of participants:
Description of organization's role(s):
Birmingham Women's Hospital (BWHCT)
Member (Central England Haemato-Oncology Research Bank)
Guy's and St. Thomas NHS Foundation Trust
Member (Guys & St Thomas Research Tissue & Data Bank)
Imperial College London
Member (Imperial College Human Biomaterials Resource Centre)
King's College, London
Member (Kings College London Haemato-Oncology Tissue Bank)
Newcastle University
Member (The Newcastle Biomedicine Cancer Biobank)
University College London
Member (UCL/Royal Free Hospital BioBank)
University of Birmingham
Member (University of Birmingham Human Biomaterials Resource Centre)
University of Dundee
Member (Tayside Tissue Bank)
University of Leeds
Member (Leeds University Research Tissue Bank)
University of Liverpool
Member (Liverpool Tissue Bank)
University of Manchester
Member (Manchester Biomedical Research Centre Biobank)
 
TOTAL PARTICIPANTS:
 

Notes on Participants/Organizations:
Also listed as members are the following collaboratories:

Children's Cancer and Leukaemia Group (CCLG)
UK CLL Forum
DNA Bank Forum
Wales Cancer Bank

   
     
 
 

Communications Technology Used :

  Email forums  
 

Technical Capabilities :

   
  Key Articles :    
 

Project-reported performance data :

   
 
         
    
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