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Name of Collaboratory :

 

Competence Network Multiple Sclerosis (KKNMS)

 
 

URL :

  http://www.kompetenznetz-multiplesklerose.de/  
 

Collaboratory Status :

 
In Development   Start Date : 2009 End Date : Info Last Updated : Tue, Nov 2 2010 5:00am PDT
 
 

Primary Collaboratory Function :

  Distributed Research Center  
 

Secondary Collaboratory Functions :

  Community Data Systems  
 

Domain(s) :

  BIOLOGICAL/AGRICULTURAL SCIENCES >Biological Sciences >Biomedical Sciences, BIOLOGICAL/AGRICULTURAL SCIENCES >Biological Sciences >Pathology, Human and Animal  
 

Brief Description of the Collaboratory :

 

The disease-oriented Competence Network Multiple Sclerosis (Kompetenznetz Multiple Sklerose – KKNMS) is one of 21 nationwide medical competence networks funded by the German Ministry of Education and Research. These networks all aim to bring together researchers on a national and interdisciplinary level to work on the specific disease entities, with the ultimate goal of improving patient care.

It is the aim of the KKNMS to change this, as well as to improve diagnostics and treatment.

The members of an international board of experts have chosen for the first funding phase up to 2012 three research networks:

UNDERSTANDMS
CONTROLMS
CHILDRENMS

For the most important overarching questions and issues within the network the following workgroups, so-called task forces, have been set up:

IT management
CNS pathology
Imaging
Biobanking
Registry

The network’s infrastructure is presently being established. The first measure was to set up an administrative office for the KKNMS which also serves as the network headquarters. This office is located in Munich.

The research network UNDERSTANDMS is mainly focussed on the cause and development of multiple sclerosis. CONTROLMS examines established as well as new diagnostic and therapeutic approaches. CHILDRENMS aims at investigating multiple sclerosis in childhood and adolescence.

The nationwide cooperation of leading MS experts working together through the KKNMS provides unique professional competence. Effort will be made to facilitate the transfer of research findings into clinical practice so that patients will benefit more directly. For physicians, practices and clinics, the KKNMS would like to serve as a first contact for information and assessment of latest research findings or clinical studies as well as provide recommendations for diagnostics and treatment.

The network will thus make a significant contribution to the optimization of MS patient care in Germany.

Spokesperson: Prof. Dr. Heinz Wiendl, Münster

Member of the Technologie- und Methodenplattform für die vernetzte medizinische Forschung (TMF) collaboratory.

 
 

Access to Instruments :

   
 

Access to Information Resources :

   
 

Access to People as Resources :

   
 

Funding Agency or Sponsor :

 
Federal Ministry of Education and Research (BMBF)
 
 
 

Notes on Funding Agencies/Sponsors:
Initial funding phase is up to 2012.

 
 
 
Organizations with Funded Participants:
 
Organization name:
Approx # of participants:
Description of organization's role(s):
Deutsche Knochenmarkspendedatei (DKMS)
1
CONTROL MS (Wassmuth)
Friedrich-Alexander-University of Erlangen-Nürnberg (FAU)
1
CONTROL MS (Pfeifer)
Georg-August-Universität Göttingen
3
UNDERSTAND MS, IT Management Task Force, CNS Pathology Platform Task Force, Imaging Task Force (Bruck, Rienhoff, von Ahsen)
   Universitätsmedizin Göttingen
5
UNDERSTAND MS, CHILDREN MS (Flugel, Lodygin, Odoardi, Körner, Lühder, Gartner)
Heinrich-Heine University Dusseldorf
2
CONTROL MS (Hartung)
Helmholtz Zentrum München - German Research Center for Environmental Health
2
CONTROL MS, Biobanking Task force (Ueffing, Meitinger)
Human Motion Institute
1
CONTROL MS (Daumer)
Ludwig Maximilians University (University of Munich)
3
UNDERSTAND MS, CHILDREN MS (Kerschensteiner, von Kries, Grote)
Max Planck Society
   Max Planck Institute of Psychiatry
2
CONTROL MS (Weber, Holsboer)
   Max Planck Institute of Neurobiology
5
UNDERSTAND MS (Wekerle, Berer, Krishnamoorthy, Meinl, Hohlfeld)
New York University (NYU)
   NYU Langone Medical Center
1
CONTROL MS (Inglese)
Otto-von-Guericke-Universitat Magdeburg
1
UNDERSTAND MS, Imaging Task Force (Sailer)
Philipps-Universität Marburg
1
CONTROL MS, IT Management Task Force, Biobanking task force (Antony)
Ruhr-Universitat Bochum
3
CONTROL MS (Gold, Stroet, Chan)
Technische Universität München (TUM)
2
UNDERSTAND MS, Biobanking task force (Jochin, Hemmer)
Albert-Ludwigs-Universität Freiburg
   Universitätsklinikum Freiburg
1
UNDERSTAND MS (Prinz)
Johannes-Gutenberg-Universitat Mainz
   Universitätsmedizin Mainz
8
UNDERSTAND MS, Biobanking task force (Jonuleit, Trinschek, Becker, Tuttenburg, Waisman, Wörtge, Kurschus, Zipp)
Universität Lübeck
1
CONTROL MS, Biobanking task force (Ziegler)
University Medical Center Hamburg-Eppendorf
9
UNDERSTAND MS, Imaging Task Force (Fiehler, Martin, Wandinger, Sturner, Winkler, Schippling, Heessen, Bester, Holst)
University of Heidelberg
1
UNDERSTAND MS (Wildemann)
University of Muenster
1
UNDERSTAND MS, Biobanking task force (Wiendl)
University of Würzburg
5
UNDERSTAND MS, Biobanking task force (Huang, Schwab, Dreykluft, Wiendl, Fejfar)
 
TOTAL PARTICIPANTS:
59
 

Notes on Participants/Organizations:
They have an executive board, a scientific advisory board, and a dedicated administrative office at the Technical University of Munich.

As early as the constitutive meeting of the competence network multiple sclerosis in September 2009, the members discussed the founding of a non-profit organization. At the founding meeting, during the kick-off symposium at the end of March 2010 in Munich, the articles of the organization were unanimously adopted. Being a separate legal entity, the organization gives the KKNMS the necessary capacity to act and guarantees the sustainability of the structural measures after the grant from the Federal Ministry of Education and Research has ended.

The organization will also serve as a contact for physicians, pharmaceutical companies, patients as well as professional organizations (i.e. the German Society for Neurology, the German MS Society). It has the goal of promoting the network of MS research in Germany and consolidating the exchange between research and patient care.

   
     
 
 

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