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Name of Collaboratory :

 

Childrens Cancer and Leukaemia Group (CCLG)

 
 

URL :

  http://www.cclg.org.uk/  
 

Collaboratory Status :

 
Operational   Start Date : 2006 End Date : Info Last Updated : Wed, Nov 3 2010 2:00am PDT
 
 

Primary Collaboratory Function :

  Distributed Research Center  
 

Secondary Collaboratory Functions :

  Virtual Community of Practice  
 

Domain(s) :

  BIOLOGICAL/AGRICULTURAL SCIENCES >Biological Sciences >Biomedical Sciences, BIOLOGICAL/AGRICULTURAL SCIENCES >Biological Sciences >Pathology, Human and Animal  
 

Brief Description of the Collaboratory :

 

The Childrens Cancer and Leukaemia Group (CCLG) is the national association of healthcare professionals involved in the treatment and care of children and younger teenagers with cancer. They are also a registered UK charity.

CCLG members underpin all activity in paediatric oncology in the UK and promote research and best standards of care for children.

Their award-winning publications offer essential information and support for families to help them through the difficult journey ahead.

Their aim is to cure even more children and to work hard to ensure a normal future - both physical and emotional - for survivors.

Many activities contribute towards this goal: education, meetings, networking, liaison with governments and other bodies, information provision for families and healthcare professionals, and the promotion of research. Through a network of specialist centres, members aim to provide the best possible treatment for all children with cancer and leukaemia, wherever they live, and as close to home as possible.

CCLG supports research in a number of areas, including studies to improve understanding of the biology of childhood cancers. The CCLG Tissue Bank is a vital asset in this work.

 
 

Access to Instruments :

   
 

Access to Information Resources :

   
 

Access to People as Resources :

  Linking up with colleagues is important to members, and a number of meetings are held each year to allow updates on key issues, to enhance professional education, and for networking or discussion of difficult cases.  
 

Funding Agency or Sponsor :

   
 
 

Notes on Funding Agencies/Sponsors:
CCLG receives no permanent funding and is heavily reliant on its fundraisers. The work of CCLG continues to expand and there is a constant need for financial support.

CCLG is a registered charity (No. 286669) and, therefore, able to receive donations. They can channel donations towards specific areas of their work if donors wish.

 
 
 
Organizations with Un-Funded Participants:
 
Organization name:
Approx # of participants:
Description of organization's role(s):
Addenbrooke's Hospital
Member
Birmingham Children's Hospital
Member
Children's Hospital of Wales
Member
Great Ormond Street Hospital for Children
Member
John Radcliffe Hospital
Member
Leeds General Infirmary
Member
Leicester Royal Infirmary
Member
Newcastle University
4
CCLG Central Tissue Bank
Our Lady's Hospital for Sick Children
Member
University of Nottingham
Queens Medical Center
Member
Royal Aberdeen Children's Hospital
Member
Royal Hospital for Sick Children, Belfast
Member
Royal Hospital for Sick Children, Bristol
Member
Royal Hospital for Sick Children, Edinburgh
Member
Royal Hospital for Sick Children, Glasgow
Member
Royal Hospital for Sick Children, Wales
Member
Royal Liverpool Children's Hospital
Member
Royal Manchester Children's Hospital
Member
Royal Marsden Hospital
Member
Royal Victoria Infirmary
Member
Sheffield Children's Hospital
Member
Southampton General Hospital
Member
University College London Hospital
Member
University of Leicester
5
Coordinating Center
 
TOTAL PARTICIPANTS:
 

Notes on Participants/Organizations:
CCLG members represent all disciplines involved in the care of children with cancer and are based in, or linked to, a network of principal treatment centres across the UK and Ireland. It is in these centres that the majority of children with cancer are treated.

There are also a number of overseas members.

Oversight of all the activities of CCLG is carried out by an Executive Group, elected from among the membership, which includes three Officers (Chairman, Secretary and Treasurer), as well as other elected members. The CCLG Executive Director is ex officio a member of the Executive Group.

A number of different working groups, such as Biological Studies, Publications, or Late Effects, lead on the different areas of activity carried out within CCLG. Each of the different childhood tumours is represented by a Special Interest Group.

The Coordinating Centre, based within the University of Leicester, houses the Secretariat and team supporting the Tissue Bank and biological studies.

A new group for supporters of CCLG, and who are not eligible for membership of CCLG, has recently been set up – The Friends of CCLG. The CCLG Constitution contains more information about the aims and organisation of the Group.

They have three categories of membership:

1. Full Members: Professionals such as consultants or senior nurse status (or equivalent), who have a significant day-to-day involvement in either multidisciplinary care or scientific research, of children and younger teenagers with cancer and leukaemia. To become a full member, they must be nominated and seconded by two existing Full Members. Their nomination is approved at one of CCLG's biannual meetings. They have to pay a subscription fees.

2. Associate Members: Healthcare professionals engaged in fields closely related to, or at times involving, the treatment of children with malignant diseases, or may be individual physicians who have a major shared-care commitment in collaboration with a regional centre.

To become an associate member, they must be nominated by the Centre Coordinator for CCLG or Interest Group Chair. This does not require formal approval. Once notification is received, membership status will be confirmed on payment of the subscription fee.

3. Honorary Members: Former members who are retired from active practice. They are not required to pay an annual membership fee.

   
     
 
 

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